I have a strange genetic disorder called Porphyria....the chemical structure in there is that of the simplest porphyrin.....I plan on getting a tattoo of it within the next year. without the flowers, of course......just the chemical structure.
It has been a major part of my life, causing many symptoms. Weird symptoms. It has caused a lot of struggles but I'm better because of it.
several of us on the Porphyria facebook group- the main way we can connect- are forming a more permnant organization but of yet it is very informal. Nevertheless, an important part of my life.




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